Original post from September A useful caring thread. I have just applied for PIP. Suffered left hand stroke about 18 months ago. Can now walk unsteadily sort distances, if I very careful I can shower myself , takes ages. Left hand is almost useless. Worst bit if I any form of exercise I get hit by nuero fatigue. Still have to have my groceries delivered but am capable of ordering them on line.
Two things come to mind compared to some of the awful cases on here am I really entitled to PIp and reading some of the reasons for people not receiving benefit it feels like I wouldn’t stand a chance of getting accepted anyway.
Hi
manji, sorry to hear about your stroke. I'm sorry the system makes ill people like you jump through such hoops.
Have someone go with you - to help you get there and for moral support. (it used to be that simply going on your own counted against you) Be aware that staff may be assessing you from the moment you arrive, as you arrive, at reception as you are waiting. I think they make people wait on purpose.
They are filling in a a sort of general form that generates a 'report'. Don't expect that they know anything about you or your condition. They are not doctors but usually a 'healthcare' professional' which could mean you are seen by someone like nurse, paramedic or physio. So spell out out what the symptoms of your condition are, even if it seems obvious to you. Be detailed be graphic. Don't be afraid to repeat things.
Tell them what its like on your very worst days. Yes maybe sometimes you can do this or that, but tell them about the bad days when you struggle or can't do this or that. Be sure to stress that even where you can do something - that you can't do it
repeatedly, regularly and reliably. That is supposed to be the standard to which they assess you.
Tell them what you need help and support with - even if that help is just having someone there to reassure, prompt or remind you - that counts as needing help. It's not easy to admit when you have to rely on others - but do tell them. If you have to rely on friends on family to do anything for you at all - imagine how could you do those things with out them. In most situations most of us like to look on the bright side and say
'yes I can do that, but I may need a little help'.
Don't do this in your assessment. Be pesamistic, them the worst it is for you, (sorry I know its depressing to do this and not good for your self esteem).
eg if they ask
can you walk 200 meters unaided? even if you can or can sometimes - can you do that all on your own or do you need someone to steady you or to accompany you in case you fall? then the answer is
NO I can't do it unaided. Can only do it if you rest half way? then the answer is
NO. Can do it but then are too fatigued to do anything else? Then say so.
If they ask any question where your answer is
yes I can do that - ask yourself can you do it
repeatedly, regularly and reliably and if not tell them why. eg
yes I can that but it causes accidents / causes me a lot of pain / utterly exhausts me and I'll need to rest.
Bizarrely they are not interested in shopping - but they are interested in daily activities like personal care, dressing, washing, communication etc. And how you can travel and how you can socialise.
Take copies of all your appointment/presciption/ any medical letters and make them take copies of them to go along with your report. Expect them to ask you questions that don't seem revelant to your condition.
I wish you all the best.