The big disabled organisations far from being representative of the people they purport to support, are, in my view, largely staffed by non-disabled careerists who use organisations such as Radar, Scope, Leonard Cheshire etc purely to tick the right boxes on their CVs. For the most part, these organisations are not representative of the groups they serve; in my experience, most people with spastic conditions, for instance, CP and hemi-plegia, do not belong to Scope – for that matter, they don’t belong to any of the formal disability organisations.
The only way we, disabled people, can get our voices heard above the hubbub of competing pressure groups, would be through grass roots organisations. However, organising, by its very nature a time-consuming pastime, is often outside the physical, mental and emotional capabilities of many disabled people – in short, we find day-to-day living on starvation benefits so physically, mentally and emotionally grinding; that the idea of organising ourselves into a cohesive fighting-back group is quite difficult.
Yet, we do fight back. We challenge government – I was part of a contingent from the Coalition Against the Welfare Reform Bill that met up with Anne McGuire last December – lot of fucking good that did. In the past groups like DAN have made a big impact – remember a few years ago the ‘blood’ on the pavement outside the gates of Downing Street.
But, disability isn’t hip. It’s at the shite end of the equalities – a case of, therefore but for the grace of god go I. While the press covered the Downing Street incident; this was a one-off. Some time later, during Labour’s first Welfare Reform, I was with a group that was holding daily protests outside Parliament – yes, you could actually protest with banners, placards loud hailers etc in front of the St Stephen’s Gate entrance!
As always there were lots of press milling around; sniffing about for something to fill the emptiness of their rags. On one occasion a Times reporter stopped for a chat; and, we tried to get him interested in the issue of Welfare Reform, the taxing of IB etc. He told us he’d only be interested in doing a piece if we were willing to perform a similar ‘stunt’ to that carried out by DAN – in other words invent sensational news for his fucking rag.