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Long Covid

A housemate had covid early on, and has been having heart trouble and clotting. Mid-20s. Grim.

One of the big gotchas with ME/CFS (I'm not a medic, but I do spend a lot of time working in a surgery...you pick stuff up) is that there's no diagnostic test, no marker that they can pick up and use to diagnose it.
That may change soon(ish).

Blood test successfully discriminated between people with or without ME, though the researchers aren't sure why, yet: Chronic fatigue syndrome: New test in sight

Eye symptoms may have diagnostic potential: Visual stress could be a symptom of Chronic Fatigue Syndrome, research suggests
 

Sorry for the source. This is nasty :(
35 people reported to have sensorineural hearing loss (so not due to outer- or middle ear problems) from covid, as of the start of August.

 
A housemate had covid early on, and has been having heart trouble and clotting. Mid-20s. Grim.

That may change soon(ish).

Blood test successfully discriminated between people with or without ME, though the researchers aren't sure why, yet: Chronic fatigue syndrome: New test in sight

Eye symptoms may have diagnostic potential: Visual stress could be a symptom of Chronic Fatigue Syndrome, research suggests

Symptoms include extreme tiredness, difficulty sleeping, trouble with thinking and remembering things, muscle pain and aches, a recurring sore throat, and tender lymph nodes.

This is almost exactly what my partner is dealing with :(
 
Before covid? Look up the Canadian criteria for ME/CFS. See if that fits.
If not then yeah, long covid has quite a lot of overlap.

Good luck with the doctor x

It's complicated. She has endometriosis, so health not great before, but since we've had it (maybe) it's been worse. Hard to know what causes what, but it's set against dealing chronic pain. However some of symptoms listed are now new or worse since the virus.

So I guess I'm pretty lucky really. But I hope they can give me something to stop the dam itching.
 
A housemate had covid early on, and has been having heart trouble and clotting. Mid-20s. Grim.

That may change soon(ish).

Blood test successfully discriminated between people with or without ME, though the researchers aren't sure why, yet: Chronic fatigue syndrome: New test in sight

Eye symptoms may have diagnostic potential: Visual stress could be a symptom of Chronic Fatigue Syndrome, research suggests
That new test is hopeful. A lot of people with CFS still have trouble getting recognised by doctors. I suppose it might also say something about the mechamism of CFS. I'm hoping cv-19 will result in some more serious research into it all. My impression is that big money has never gone into it - too complex, too vague, too difficult to tell if it's real etc.
 
A dynamic review of the evidence around ongoing Covid19 symptoms (often called Long Covid).
 
Unsurprisingly doctor wasn't able to comment much, although they are sending me for bloods to check it's not something else.

Got some steroid cream for the skin thing. Got it confirmed it is psoriasis, apparently it uncommon after a viral infection.
 
seeking thoughts from the urban hive mind...

i had what i took to be a feverish cold / light flu some time mid / late february, before covid was really a thing here (so before covid testing / self isolation was being talked about.) had a bit of a temperature (was a bit hot and sweaty - no idea what actual temperature was), bit of coughing and sneezing, but wasn't bad enough to take time off work, then worked silly hours for much of the lockdown.

i still feel kinda shit - headaches a lot of the time (i get migraines now and then, but this is most of the time), occasional slight cough, not exactly a sore throat but something is not quite right, guts also not quite right but nothing drastic, full of aches and pains and feel bloody knackered, which i had initially put down to working silly hours for a few months on the go, but i've been back on working office hours and taking occasional days off the last few weeks (i've now taken all the holiday for the year up to end of march 2020) haven't noticed breathing difficulties but then i rarely try to do anything too energetic, no sign of any rashes etc

just starting to wonder if i did the hipster cat thing and had (mild) covid before it was mainstream and now have the long covid.

is there any test i can take that will mean anything?

am i possibly infectious? (i'm on work from home now anyway)

is there anything i can do apart from hope it will get better eventually?

anyone got any thoughts?
 
After mentioning to my GP quite a few times that I’m still not feeling great since I was poorly in March, I completely broke down this week and they’re doing some tests.
The GP suggested that a lot of my issues could be long Covid. Generally feeling of not being quite right, tired, emotional, a cough on and off, shortness of breath, sinus issues. Most of these could also be stress too.
I didn’t mention the headaches.
I’m having an antibody test, he warned me that it will probably be negative given the timescales but still thinks it’s worth doing. I’m also having an ECG and blood tests. Although they’ve completely stopped blood tests in my area as there’s a shortage of whatever the thing is that they process them with.


Puddy_Tat definitely speak to your GP. I wish I’d pushed before for them to take me seriously. They might do an MOT including an antibody test.
 
I've had blood tests done. I'm not expecting much. The fustrating thing is there just doesn't seem to be much they can do.

I think I do feel a little better these last few weeks in terms of the tiredness. Trying not to get my hopes up though as I know it's not exactly linear.
 
Just F. Y. I. Our neighbours two doors down had Covid back at the very start of the pandemic. Knew the chain of infection and everything, plus subsequent positive antibody tests. Both get days when they lose their sense of taste and smell, other days they're fine. He loses senses 25% of days, she 50%. I hadn't realised that the loss of senses could come and go like that. He says that when he wakes up in the morning he can tell what kind of a day he's going to get.
 
Hi guys been absent from Urban for months as have been having a very hard time with long covid. 8 months of symtpoms and skin stuff too as above. was very depressed for a few months. diagnosed with chronic fatigue and living with my parents. not easy tbh.

been improving a bit slowly the past 2 months so fingers crossed. i have no antibodies btw or lung damage. tests showed i was exposed to glandular fever at some point too.
 
Sorry to hear that. I had long glandular fever in my early 20's, it faded eventually but I didnt really record the timescale it took at the time.
 
My partner hasn't got Long Covid but does have post viral fatigue from a sinus infection. It's been 3 months so far and she's really starting to struggle though has been particularly low this week. She's had some good periods too and has just started to use the spoon theory which some might be familiar with.

Supporting her with it at the moment and have showed her whatever happens we'll survive financially even when sick pay ends. I mean we've always survived on low pay and this is the first time we've had the luxury of sick pay.

I'm starting to worry slightly that this is going to be a long term thing though and how this will affect her.
 

The NHS will launch a network of more than 40 ‘long COVID’ specialist clinics within weeks to help thousands of patients suffering debilitating effects of the virus months after being infected.

The clinics, due to start opening at the end of November, will bring together doctors, nurses, therapist and other NHS staff to physical and psychological assessments of those experiencing enduring symptoms.

The condition, which is thought to affect more than 60,000 people in the UK, can cause continuing fatigue, brain fog, breathlessness and pain.

NHS England has provided £10 million to fund the pioneering clinics, which will see patients who have been hospitalised, officially diagnosed after a test or reasonably believe they had COVID-19.

Ten sites have been earmarked for the Midlands, seven in the North East, six in the East of England, South West and South East respectively, five in London and three in the North West.

Patients will be able to access services through a GP referral or referral from other healthcare professional, allowing doctors an opportunity to rule out any other possible underlying causes for symptoms, such as suspected stroke, lung cancers or respiratory conditions.

The NHS has also launched a new taskforce, with patients, charities, researchers and clinicians, to help manage the NHS approach to ‘long COVID’ and produce information and support materials for patients and healthcare professionals to develop a wider understanding of the condition.

NHS Chief Executive Sir Simon Stevens said: “Long COVID is already having a very serious impact on many people’s lives and could well go on to affect hundreds of thousands.

“That is why, while treating rising numbers of patients who are sick with the virus and many more who do not have it, the NHS is taking action to address those suffering ongoing health issues.

“These pioneering ‘long COVID’ clinics will help address the very real problems being faced by patients today while the taskforce will help the NHS develop a greater understanding of the lasting effects of coronavirus.”

A study from King’s College London found that older people, women and those with a greater number of different symptoms in the first week of their illness were more likely to develop long COVID with one in 10 still unable to shake off the side effects eight weeks after infection.

More recent evidence is also showing that long COVID can be categorised into four different syndromes: post intensive care syndrome, post viral fatigue syndrome, permanent organ damage and long term COVID syndrome.
 
Seems the focus there is on people who had 'acute' covid, i.e. those who were in hospital. There doesn't seem to be any recognition that probably the majority of people with longcovid had it mildly and weren't hospitalised.

Edit: I may have misinterpreted it, maybe it refers to acute covid versus long covid, i.e. the illness proper versus the post-covid symptoms
 
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Great to see the long Covid clinics opening, but I've been diagnosed with ME/CFS over a year ago and am STILL waiting to see a specialist doctor. Such an insult to the thousands of people suffering with this horrible invisible disease, which has been all but ignored by the medical profession for decades.
 
Great to see the long Covid clinics opening, but I've been diagnosed with ME/CFS over a year ago and am STILL waiting to see a specialist doctor. Such an insult to the thousands of people suffering with this horrible invisible disease, which has been all but ignored by the medical profession for decades.
The lack of research into ME/CFS is enraging every time I read about t. The only explanation for it is that doctors have so often been convinced that it's all in the head, because their standard tests couldn't find anything wrong. But it clearly is a physical thing, they just needed to be looking harder. The fact that women get it more has probably contributed a lot to it being ignored - doctors find it easier to disbelieve women. There does seem to have been a bit more research in the last ten years, but it's a very complicated syndrome and it needed to start decades ago.
 
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