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Long Covid

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zahir said:
New government guidance.

www.gov.uk

[Withdrawn] Coronavirus (COVID-19): long-term health effects

www.gov.uk www.gov.uk

Around 10% of mild coronavirus (COVID-19) cases who were not admitted to hospital have reported symptoms lasting more than 4 weeks. A number of hospitalised cases reported continuing symptoms for 8 or more weeks following discharge.

Persistent health problems reported following acute COVID-19 disease include:

  • respiratory symptoms and conditions such as chronic cough, shortness of breath, lung inflammation and fibrosis, and pulmonary vascular disease
  • cardiovascular symptoms and disease such as chest tightness, acute myocarditis and heart failure
  • protracted loss or change of smell and taste
  • mental health problems including depression, anxiety and cognitive difficulties
  • inflammatory disorders such as myalgia, multisystem inflammatory syndrome, Guillain-Barre syndrome, or neuralgic amyotrophy
  • gastrointestinal disturbance with diarrhoea
  • continuing headaches
  • fatigue, weakness and sleeplessness
  • liver and kidney dysfunction
  • clotting disorders and thrombosis
  • lymphadenopathy
  • skin rashes
Research to evaluate the long-term health and psychosocial effects of COVID-19 is continuing. Major studies include the Post-Hospitalisation COVID-19 study (PHOSP-COVID) in the UK and the International Severe Acute Respiratory and emerging Infection Consortium (ISARIC) global COVID-19 long-term follow-up study.

Patients recovering from COVID-19 infection should speak to their GP about local care pathways for support and assessment of any long-term symptoms or health problems. Healthcare providers can also refer patients to the online COVID recovery programme.

The NHS has produced guidance for primary care and community health services to meet the immediate and longer-term care needs of patients discharged following an acute episode of COVID-19.
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That's encouraging progress to see official acknowledgement of longer experience of symptoms


It's still frustrating to see the support and studies outlined above are only about post hospitalised cases
 
www.theguardian.com

Coronavirus: 60,000 may have 'long Covid' for more than three months – UK study

Researchers say people with prolonged symptoms at risk of being forgotten as they struggle to get help
www.theguardian.com www.theguardian.com
Up to 60,000 people in the UK may have been suffering from “long Covid” for more than three months, unable to get the care they need to recover from prolonged and debilitating symptoms.

Tim Spector, a professor of genetic epidemiology at King’s College London who runs the app-based Covid symptom study, said around 300,000 people had reported symptoms lasting for more than a month.

A minority have been suffering for longer; up to 60,000 people have reported having symptoms for more than three months.
Click to expand...
 
My mum is still getting odd issues with fatigue although much less now, I seem to have pretty much recovered tbh. Although I've got a gastric complaint that seems to have made a comeback and probably got worse, I am not sure that can be ascribed to covid tho.
 
frogwoman said:
My mum is still getting odd issues with fatigue although much less now, I seem to have pretty much recovered tbh. Although I've got a gastric complaint that seems to have made a comeback and probably got worse, I am not sure that can be ascribed to covid tho.
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don't be so sure it's not! I have a friend that has a past gastric weakness. When he got covid his symtoms were very GI based. They have come and gone over last 4 months. He felt totally better a month ago and last week he had a re -run of symptoms enough to put him out of action for 4 days - I doubt it's not related to covid. Even if it's only that his immune system has been so overstretched that underlying weaknesses can return frequently
 

Until now, the patients have been leading the research into Long Covid, driving for recognition and trying to establish what could possibly work for rehabilitation. But now the medical establishment is starting to take notice. What clinical and academic research projects might we expect into the condition, and what questions do they hope to answer? Featuring interviews with Professor Danny Altmann from Imperial College London and Professor Rob Copeland from Sheffield Hallam University.
Click to expand...
 
Something I was listening to pointed to how while covid is often limited to respiratory symptoms it can take a fair old tour of the body eg covid toes and is a form of vascular disease rather than a respiratory disease. Is that what your sources are also saying?

I have no idea what the implications of that are, just wondering. Though thinking of it as a vascular disease would perhaps point the way in how to treat long covid sufferers.
 
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The way forward said:
I am a 59 year old male w/type1 diabetes. I do not have a doctorate but I do have many years of natural health practice behind me. I am frustrated with People not believing me. I have a job that takes me around the U.S. and I am exposed to most everything. Feb 1st thru 4th I was working above Boston and started feeling the flu symptoms I took what I normally do it did nothing. I racked my brain that night and realized I still had H2O2 food grade sitting at home unused for 6yrs when I arrived home next day I immediately tried 6 drops in 12 oz H2O I felt better within 5 min I have taken it now Daily for 7 months the ideal amount is 9 drops in 12 oz H20 always dilute the H202 ! The only time i was fearful of the covid was when i had a trip and forgot the H202 no symptoms the first three days then I almost started panicking cough developed and I could feel my breathing becoming faster as soon as I arrived home I took a dose of H202 and all symptoms stopped within 5 min. This treatment could save multiple people a gallon costs about 50 dollars and contains 78000 to 90000 drops depending on the web site. yes we could easily put this on the back burner and go back to our regular lives . one caveat beware of the potential of a herxheimer reaction please research.









0
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The Herxheimer reaction is a very specific thing.

It can occur when treating a spirochete infection (usually syphilis) with penicillin.
 
A colleague who I manage came to see me yesterday. She said that over lockdown her family had covid. Her brother was hospitalised and her and her mum had cold symptoms. Both her mum and brother have been tested positive for antibodies.
However the problem is she is struggling to walk short distances, getting out of breath and feeling weak. She's 28, no other health needs.
 
frogwoman said:
My mum is still getting odd issues with fatigue although much less now, I seem to have pretty much recovered tbh. Although I've got a gastric complaint that seems to have made a comeback and probably got worse, I am not sure that can be ascribed to covid tho.
Click to expand...


A lot of long-haulers are reporting that old injuries and old pathologies are popping up again.

It’s very curious. Have people just somehow kinda gotten used to he ghost of old pathologies and they just done the registers, and now they’re paying close attention to any and all glitch & twitch? Is it that old inflammationsa are still churning away inside us sub-clinically and Covid ramps it up to clinical /symptomatic levels? Or is Covid reactivaring old scars and patterns?

It’s really fascinating.



The current working hypothesis is that it’s bradykinins rather than cytokines that are the culprit.



Here’s the story, just in case it’s not been linked on here before (I’ve not checked, but anyway it’s worth repeating)..

 
Some stuff on new research here, which is promising. Unfortunately a lot of the studies are still focused on people who have been hospitalised. Some paramedics I spoke to said their experience has been that it is people who had the virus mildly who end up with long term symptoms, which confirms my experience and a lot of the experiences of people on online forums.



oh, sorry, just saw this was posted above
 
Chilli.s said:
From the USA... Hydrogen peroxide (H202) as a health tonic/cure all! I suppose if you have no easy access to healthcare then it could be tempting. Even The Sun and The Mail have warned against this though.
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My gran used to use it dye her hair (she went grey at 25, which happens to every second generation of the women on my mum's side of the family).
 
Study of persistent fatigue following covid.

www.medrxiv.org

Persistent fatigue following SARS-CoV-2 infection is common and independent of severity of initial infection

Fatigue is a common symptom in those presenting with symptomatic COVID-19 infection. However, it is unknown if COVID-19 results in persistent fatigue in those recovered from acute infection. We examined the prevalence of fatigue in individuals recovered from the acute phase of COVID-19 illness...
www.medrxiv.org www.medrxiv.org
Of 128 participants (49.5 ± 15 years; 54% female), more than half reported persistent fatigue (52.3%; 45/128) at 10 weeks (median) after initial COVID-19 symptoms. There was no association between COVID-19 severity (need for inpatient admission, supplemental oxygen or critical care) and fatigue following COVID-19.
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I have a friend who has MS (very used to MS relapses causing pain, additional symptoms and exhaustion already), who is only just, tentatively, feeling she is on the road to recovery since getting covid in March.
Very mild symptoms to start with but then, weeks later, chest pain, difficulty breathing, feet erupted in blisters and crushing fatigue, in combination with the usual MS levels of fatigue.
 
I ran 72km across the Peak District just over a year ago (well walked a good chunk but still). I'm really struggling to run 5km on tarmac at the moment. I think I had in March/April time. It's certainly a fucker. I'm lucky really I wasn't that ill, but it just drags on and on. :(
 
Brainaddict said:
Some stuff on new research here, which is promising. Unfortunately a lot of the studies are still focused on people who have been hospitalised. Some paramedics I spoke to said their experience has been that it is people who had the virus mildly who end up with long term symptoms, which confirms my experience and a lot of the experiences of people on online forums.
Click to expand...


This video on recovery from long covid is from the same series and is worth watching for anyone dealing with symptoms.

 
zahir said:
This article has a useful diagram of potential long covid symptoms and their frequency.

www.bloomberg.com

Covid-19 Long-Haulers: Some Patients Need Very Long-Term Care

Doctors and hospitals need to figure out how to help “long-haulers,” whose symptoms persist for months.
www.bloomberg.com www.bloomberg.com

ETA: The diagram is based on this report:

https://dig.abclocal.go.com/wls/documents/2020/072720-wls-covid-symptom-study-doc.pdf
Click to expand...

That's intresting. A fair few boxes apply to my partner and myself, but in different ways. I'm without a doubt needing more sleep, although more seriously she's having massive issues. The dryness of skin I'd put down to getting psoriasis at almost 40 and was going to book a doctors, my GI Tract ain't great and others.

The weight gain probably can't be blamed on it. That's more likely big dinners, beer and not enough exercise.
 
UnderAnOpenSky said:
I ran 72km across the Peak District just over a year ago (well walked a good chunk but still). I'm really struggling to run 5km on tarmac at the moment. I think I had in March/April time. It's certainly a fucker. I'm lucky really I wasn't that ill, but it just drags on and on. :(
Click to expand...
It really does drag on and on

That question: are you back to your baseline health?

Should be asked by eveyone who had covid and be taken seriously by clinician.

It's also a different psychosocial time to experience an illness. That will be a factor
 
Miss-Shelf said:
It really does drag on and on

That question: are you back to your baseline health?

Should be asked by eveyone who had covid and be taken seriously by clinician.

It's also a different psychosocial time to experience an illness. That will be a factor
Click to expand...

Yeah. Ones person's baseline is different to another. My partner is far worse then me, but maybe because of other health problems, is definitely having a rougher time. She actually got tested in April, but there were no tests, so it was symptom based and they said she didn't have it. Obviously we know now the symptoms are broader then they first thought.

I've had to change jobs as well because of lack of work in what I normally do. It's a bit gutting, but looking back maybe a good thing. A really physical summer would have probably destroyed me.

Feel drained this morning, two days with some short runs in. Might have to knock this on the head a bit longer. Weirdly though I felt OK with two days of biggish hill walking a few weeks back.
 
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