I totally relate to what you say
iona about feeling a hypocrite when you have good days/even weeks or whole months. I am the same, my condition fluctuates a lot. People see (or hear about) me out and about, able to do things, and will not understand or believe there are long periods when I cannot manage doing any of these things. It's invisible as you say, and when I am badly suffering from symptoms, people just won't often get to know about it because I don't go out, or post on the internet or speak to anybody. Yes on my bad days there's no way I could write an appeal either. And I find it hard to remember how bad things get when I am having a 'good' phase. Yes, when you compare yourself to others who might be given the same rate but they are more 'obviously' disabled by their conditions, it feels like you're being a fraud, but I guess it's very individual how much a condition affects your ability to do things, and it's much less easy to quantify that (or for others to observe that) for a non-physical disability/condition.
Are you still waiting on your appeal for not showing up when they wouldn't give you a date you could get to?
A few days ago I got a letter inviting me to a new face to face assessment
(At first I thought it was a tribual date, because it was from Independent Assessment Services who I'd never heard of. But it turns out that's Atos's new name (cos Atos has now got such a bad rep I guess). So from this I'm guessing I have successfully appealed
!! Or the appeal was thrown out by the tribunal people as the ridiculous waste of time that it was
Of course the new date I was sent was in exactly the same place I told them I couldn't attend last time
I have rearranged (the letter said I could), to one that is nearer to where I live, and have got someone to come with me. Both times I've had to rearrange, there have been appointments available
nearer to where I live, and
sooner (fuck that!) than my original appointment
So their claim that the computer just spits out the appointment that's soonest and is within 1 1/2 hours travel (my original ones would have taken me longer than that), and that's why you don't always get the nearest assessment centre, is clearly spurious/bollocks.