Long Covid
- Thread starter zahir
- Start date
ska invita
back on the other side
IN the Atlantic article posted a little while back there is some clinical research there about "reprogramming"
Unlocking the Mysteries of Long COVID
A growing number of clinicians are on an urgent quest to find treatments for a frighteningly pervasive problem. They’ve had surprising early success.
"After a week, everyone in the pilot program reported improvement in symptoms like shortness of breath and fatigue. (No double-blind randomized controlled trial has yet been conducted, so it is not possible to know what percentage of the improvement was due to the placebo effect.) The patients’ responses were “game-changing,” Putrino told me.
The key was the realization that the diaphragm and the nervous system had to be coached back to normal function before further reconditioning could start. “You cannot rehabilitate someone when their symptoms are completely out of control,” Putrino said. Although patients still faced an unfolding array of unpredictable symptoms, breathwork helped get them to a “place where the healing can start.”
Riklet
procrastinación
I am giving the low histamine diet a go, not super strict but doing my best. Took a while to get my head round it tho!
Also taking high dose vic C, vit D, zinc and quercetin... oh and 2 brazil nuts a day for selenium. But yeah I think feeling psychologically supported and resting enough and taking it easy has been the main thing that has helped me. Oh also im on SSRIs (sertraline 50mg) and tbh maybe they have helped a fair bit too.
I dont do breathing exercises per say but as ive got stronger all of that has improved massively and feels a bit more natural.
Also taking high dose vic C, vit D, zinc and quercetin... oh and 2 brazil nuts a day for selenium. But yeah I think feeling psychologically supported and resting enough and taking it easy has been the main thing that has helped me. Oh also im on SSRIs (sertraline 50mg) and tbh maybe they have helped a fair bit too.
I dont do breathing exercises per say but as ive got stronger all of that has improved massively and feels a bit more natural.
Riklet
procrastinación
Ive had all of those. Gotta catch em all. What fun! Also I didnt rest enough in the first 2 weeks of the acute illness....
Still doing lots better than a few months ago though, able to bimble around the garden a bit and sit in the sun. Ive not left the house properly for 6 months though, im kinda embarrased/sad to say.
Regarding the stir Paul Gardner caused with that article - I think its understandable people are confused/hurt but fair bit of it isnt that controversial. I also think the guy has clearly been affected a lot psychologically by his experience, as have we all... maybe more than he realises though!
Still doing lots better than a few months ago though, able to bimble around the garden a bit and sit in the sun. Ive not left the house properly for 6 months though, im kinda embarrased/sad to say.
Regarding the stir Paul Gardner caused with that article - I think its understandable people are confused/hurt but fair bit of it isnt that controversial. I also think the guy has clearly been affected a lot psychologically by his experience, as have we all... maybe more than he realises though!
Last edited:
ska invita
back on the other side
oh riklet, thats harsh.
ive had about 75%.
its bizarre the way it cycles through different symptoms at different times- this week for the first time ive had burning sharp abdominal pains. Its almost funny when a new symptom comes up - its like an overthetop eyerolling plot twist in a film. now what ffs!
elbows
Well-Known Member
I didnt see this when it was published a few days ago.
Women under 50 have 'worse' Long Covid outcomes
Two separate studies suggest women under 50 have worse long-term outcomes after being in hospital with Covid.
www.bbc.co.uk
ska invita
back on the other side
I wonder if this statistic is partly driven by motherhood, as in mothers have more work to do at home and get less rest.I didnt see this when it was published a few days ago.
Women under 50 have 'worse' Long Covid outcomes
Two separate studies suggest women under 50 have worse long-term outcomes after being in hospital with Covid.www.bbc.co.uk
Such as:
ska invita
back on the other side
have been prescribed a short course of steroids - GP reckons its been getting great results with other patients he has. wont start taking till next week though for personal reasons. feels hopeful, will report back
also doctor said take more antihistamines.
also doctor said take more antihistamines.
Let us know if has an effect. The possibility of using a steroid nasal spray was mentioned to me - quite a while ago now - and I've been wondering if I should follow it up.
xsunnysuex
Life is a horizontal fall.
It will be very interesting to see DWP's take on long covid. When it comes to disability assessments. 
ONS report on long covid
Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK - Office for National Statistics
Estimates of the prevalence of self-reported “long COVID” and the duration of ongoing symptoms following confirmed coronavirus infection, using UK Coronavirus (COVID-19) Infection Survey data.
www.ons.gov.uk
planetgeli
There's no future in England's dreaming
Couple of clips from that.
Over 1.1 million sufferers.
35-69 years old most affected at 5 weeks.
25-34 years old most affected at 12 weeks.
two sheds
Least noticed poster 2007
Which steroids if I can ask? I get prednisolone if my asthma symptoms get bad.
ska invita
back on the other side
Yes that, 5mg six times a day!
Was told don't take in the evening as keeps you up, but expect 6 should be ahead through the day?
Made no difference to me since I'm avoiding people anyway.
two sheds
Least noticed poster 2007
I took all of mine at once (8 x 5mg as I recall). Not sure if you're supposed to do that or not though.
Brainaddict
slight system overdrive
When the chest x-ray comes back not showing anything you could point out to your doctor that lots of people with long covid have chest issues that don't show up on x-rays but do show in other tests. My doctor in-law said they've had a lot of success with steroid inhalers.
Worth trying the anti-histmaine anyway as lots of people have had success with it.
Do push to be referred to a long covid clinic even if x-ray comes back negative.
Looby
Well-Known Member
Thanks, will do. I think the sticking point is no positive test and negative antibody test. But we already knew the antibody test would likely be negative as I was ill in March and tested in November.
ska invita
back on the other side
Some interesting points in this, particularly about "pacing" exercise activities - i can really relate to this
www.theguardian.com
i swear the best thing that works for me so far is doing this 7 minute video...if i do it i feel somewhat better for most of the day, if i dont i feel it
theres a level of gentle breathing-centred exercising that really works for me
Women are more susceptible to long Covid, but will we listen to them?
We have a unique window to analyze how the virus overlaps with chronic illnesses – but medicine has a habit of dismissing women who suffer from them
i swear the best thing that works for me so far is doing this 7 minute video...if i do it i feel somewhat better for most of the day, if i dont i feel it
theres a level of gentle breathing-centred exercising that really works for me
Last edited:
ska invita
back on the other side
Day 3 of steroids - the big change is my breathing - its basically stopped wheeziness. This is good.
Im going to try and go for a walk today and see how that feels, but its definitely done the trick on that so far.
What post-course impact it has I'll have to wait and see.
Not sleeping well with them though, only managing about 5 hours, very mildly buzzing yesterday, lockjaw today so far
Not feeling as strong as I was expecting them to make me feel - infact a bit wobbly, but thats partially the lack of sleep
Im going to try and go for a walk today and see how that feels, but its definitely done the trick on that so far.
What post-course impact it has I'll have to wait and see.
Not sleeping well with them though, only managing about 5 hours, very mildly buzzing yesterday, lockjaw today so far
Not feeling as strong as I was expecting them to make me feel - infact a bit wobbly, but thats partially the lack of sleep
Miss-Shelf
I'll meet you further on up the road
Some interesting points in this, particularly about "pacing" exercise activities - i can really relate to this
Women are more susceptible to long Covid, but will we listen to them?
We have a unique window to analyze how the virus overlaps with chronic illnesses – but medicine has a habit of dismissing women who suffer from them
i swear the best thing that works for me so far is doing this 7 minute video...if i do it i feel somewhat better for most of the day, if i dont i feel it
theres a level of gentle breathing-centred exercising that really works for me
Thanks for sharing that
Going to give it a go
Miss-Shelf
I'll meet you further on up the road
I got referred despite same scenario of no positive test results (similar time scale )
Nice guidelines say go on symptoms even if no +ve test
My long covid clinic experience is not super fast but the referral helped me get more flexible working
Miss-Shelf just sending you love sweetheart for a quick recovery. How are you? Xx
Similar threads
